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  • Open Access

    ARTICLE

    Predicting long-term mortality after Fontan procedures: A risk score based on 6707 patients from 28 studies

    Tarek Alsaied1, Jouke P. Bokma2, Mark E. Engel3, Joey M. Kuijpers2, Samuel P. Hanke1, Liesl Zuhlke4, Bin Zhang5, Gruschen R. Veldtman6

    Congenital Heart Disease, Vol.12, No.4, pp. 393-398, 2017, DOI:10.1111/chd.12468

    Abstract Background: Reported long-term outcome measures vary greatly between studies in Fontan patients making comprehensive appraisal of mortality hazard challenging. We sought to create a clinical risk score to assist monitoring of Fontan patients in the outpatient setting.
    Methods: A systematic review was conducted to evaluate risk factors for long-term (beyond the first postoperative year) mortality in Fontan patients. Studies were eligible for inclusion if ≥90 patients were included or ≥20 long-term mortalities we reported. Risk factors for long-term mortality were determined. The pooled hazard ratios were used to create components of a clinical score for long-term mortality… More >

  • Open Access

    ARTICLE

    Building a comprehensive team for the longitudinal care of single ventricle heart defects: Building blocks and initial results

    Karen Texter1,2, Jo Ann M. Davis1, Christina Phelps1,2, Sharon Cheatham1,2, John Cheatham1,2, Mark Galantowicz1,3, Timothy F. Feltes1,2

    Congenital Heart Disease, Vol.12, No.4, pp. 403-410, 2017, DOI:10.1111/chd.12459

    Abstract Introduction: With increasing survival of children with HLHS and other single ventricle lesions, the complexity of medical care for these patients is substantial. Establishing and adhering to best practice models may improve outcome, but requires careful coordination and monitoring.
    Methods: In 2013 our Heart Center began a process to build a comprehensive Single Ventricle Team designed to target these difficult issues.
    Results: Comprehensive Single Ventricle Team in 2014 was begun, to standardize care for children with single ventricle heart defects from diagnosis to adulthood within our institution. The team is a multidisciplinary group of providers committed to improving… More >

  • Open Access

    EDITORIAL

    Speaking to children and their families about congenital heart disease: Ushering in a new era of healthcare literacy

    Daniel J Penny

    Congenital Heart Disease, Vol.12, No.3, pp. 241-241, 2017, DOI:10.1111/chd.12474

    Abstract This article has no abstract. More >

  • Open Access

    REVIEW

    Improving the quality of transition and transfer of care in young adults with congenital heart disease

    Ian K. Everitt1, Jennifer F. Gerardin2, Fred H. Rodriguez2,3, Wendy M. Book2

    Congenital Heart Disease, Vol.12, No.3, pp. 242-25, 2017, DOI:10.1111/chd.12463

    Abstract The transition and transfer from pediatric to adult care is becoming increasingly important as improvements in the diagnosis and management of congenital heart disease allow patients to live longer. Transition is a complex and continuous process that requires careful planning. Inadequate transition has adverse effects on patients, their families and healthcare delivery systems. Currently, significant gaps exist in patient care as adolescents transfer to adult care and there are little data to drive the informed management of transition and transfer of care in adolescent congenital heart disease patients. Appropriate congenital heart disease care has been… More >

  • Open Access

    ARTICLE

    Practice trends over time in the care of infants with hypoplastic left heart syndrome: A report from the National Pediatric Cardiology Quality Improvement Collaborative

    Waldemar F. Carlo1, James F. Cnota2, Robert J. Dabal3, Jeffrey B. Anderson2

    Congenital Heart Disease, Vol.12, No.3, pp. 315-321, 2017, DOI:10.1111/chd.12442

    Abstract Objective: The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) was established in 2008 to improve outcomes of hypoplastic left heart syndrome (HLHS) during the interstage period. They evaluated changes in patient variables and practice variation between early and late eras.
    Design: Data including demographic, operative, discharge, and follow-up variables from the first 100 patients (6/2008–1/2010) representing 18 centers were compared with the most recent 100 patients (1/2014–11/2014) from these same centers.
    Results: Prenatal diagnosis increased from 69% to 82% (P = .05). There were no differences in gestational age or weight at Norwood. A composite of any preoperative… More >

  • Open Access

    ARTICLE

    Defining pediatric inpatient cardiology care delivery models: A survey of pediatric cardiology programs in the USA and Canada

    Antonio R. Mott1, Steven R. Neish2, Melissa Challman3, Timothy F. Feltes4

    Congenital Heart Disease, Vol.12, No.3, pp. 294-300, 2017, DOI:10.1111/chd.12438

    Abstract Background: The treatment of children with cardiac disease is one of the most prevalent and costly pediatric inpatient conditions. The design of inpatient medical services for children admitted to and discharged from noncritical cardiology care units, however, is undefined. North American Pediatric Cardiology Programs were surveyed to define noncritical cardiac care unit models in current practice.
    Method: An online survey that explored institutional and functional domains for noncritical cardiac care unit was crafted. All questions were multi-choice with comment boxes for further explanation. The survey was distributed by email four times over a 5-month period.
    Results: Most programs… More >

  • Open Access

    ARTICLE

    Reducing variation in feeding newborns with congenital heart disease

    Janet M. Simsic, Kirby-Rose Carpenito, Kristin Kirchner, Stephanie Peters, PNP-AC, Holly Miller-Tate, Brian Joy, Mark Galantowicz

    Congenital Heart Disease, Vol.12, No.3, pp. 275-281, 2017, DOI:10.1111/chd.12435

    Abstract Objective: Enteral feeding is associated with decreased infection rates, decreased mechanical ventilation, decreased hospital length of stay, and improved wound healing. Enteral feeding difficulties are common in congenital heart disease. Our objective was to develop experience-based newborn feeding guidelines for the initiation and advancement of enteral feeding in the cardiothoracic intensive care unit.
    Design: This is a retrospective analysis of a quality improvement project.
    Setting: This quality improvement project was performed in a cardiothoracic intensive care unit.
    Patients: Newborns admitted to the cardiothoracic intensive care unit for cardiac surgery from January 2011 to May 2015 were retrospectively reviewed.
    Intervention: Newborn… More >

  • Open Access

    REVIEW

    Peri-procedural risk stratification and management of patients with Williams syndrome

    R. Thomas Collins II1,2, Margaret G. Collins3, Michael L. Schmitz2,4, Justin T. Hamrick4

    Congenital Heart Disease, Vol.12, No.2, pp. 133-142, 2017, DOI:10.1111/chd.12447

    Abstract Williams syndrome (WS) is a congenital, multisystem disorder affecting the cardiovascular, connective tissue, and central nervous systems in 1 in 10 000 live births. Cardiovascular involvement is the most common cause of morbidity and mortality in patients with WS, and noninvasive and invasive procedures are common. Sudden cardiovascular collapse in patients with WS is a well-known phenomenon, especially in the peri-procedural period. Detailed guidelines for peri-procedural management of patients with WS are limited. The goal of this review is to provide thoughtful, safe and effective management strategies for the peri-procedural care of patients with WS More >

  • Open Access

    ARTICLE

    Development of a Device in Detection of Glaucoma for Rural Eye Care Using Additive Manufacturing and TRIZ

    Mahesh B. Mawale1,*, Abhaykumar Kuthe2, Dr. Padma Pawane3, Sandeep W. Dahake2, Jyotilal S2

    Molecular & Cellular Biomechanics, Vol.13, No.2, pp. 105-114, 2016, DOI:10.3970/mcb.2016.013.119

    Abstract Purpose: The main purpose of this study is to develop a device for the indicative measurement of intraocular pressure (IOP) of eyeball, a key cause for glaucoma. In early diagnosis and treatment of glaucoma accurate measurement of IOP is important. The methods and devices which are available for the measurement of IOP have their own limitations which cause discomfort to the patients during measurement and needs anesthesia. There is a dare need of a device for the measurement of intraocular pressure by making the contact of plunger with closed eyelid eliminating the need of anesthesia… More >

  • Open Access

    ARTICLE

    Ethnobotanical survey of medicinal plants used in treatment of ticks

    Magwede K1, MP Tshisikhawe1, D Luseba2, RB Bhat1

    Phyton-International Journal of Experimental Botany, Vol.83, pp. 155-165, 2014, DOI:10.32604/phyton.2014.83.155

    Abstract The documentation of traditional knowledge on medicinal use of plants has provided many important drugs that are used worldwide on a daily basis. Traditional remedies had been (and still are) the main source of livestock ailment treatments, especially in regions of poor resources of the Vhembe District, South Africa. In many rural areas of the Republic of South Africa, traditional medicine is sometimes the only available modern orthodox health care for managing both human and animal health. Much work remains to be done regarding the documentation of the existing ethnobotanical knowledge. In this work, we More >

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