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  • Open Access

    ARTICLE

    Translation and Validation of the Family-Focused Mental Health Practice Questionnaire-Japanese Version

    Rie Ueno1,*, Darryl Maybery2, Andrea Reupert3, Hirokazu Osada4

    International Journal of Mental Health Promotion, Vol.22, No.2, pp. 59-69, 2020, DOI:10.32604/IJMHP.2020.011180

    Abstract Children of parents with mental illness are more likely to experience mental health concerns, compared to other children in the community. Thus, it is important mental health professionals identify and intervene appropriately in these families. To develop professional development activities, practice guidelines and organizational supports, it is important to first identify those practices that professionals employ and do not employ. Accordingly, a Japanese version of the Family-Focused Mental Health Practice Questionnaire was developed. In the first instance, the Questionnaire was translated into Japanese and disseminated to mental health workers in various Japanese settings. Based on 212 participants’ data, exploratory factor… More >

  • Open Access

    ARTICLE

    A Method for Assessing the Fairness of Health Resource Allocation Based on Geographical Grid

    Jin Han1, Wenhao Jiang1, Jin Shi2, *, Sun Xin2, Jin Peng2, Haibo Liu3

    CMC-Computers, Materials & Continua, Vol.64, No.2, pp. 1171-1184, 2020, DOI:10.32604/cmc.2019.07447

    Abstract The assessment of the fairness of health resource allocation is an important part of the study for the fairness of social development. The data used in most of the existing assessment methods comes from statistical yearbooks or field survey sampling. These statistics are generally based on administrative areas and are difficult to support a fine-grained evaluation model. In response to these problems, the evaluation method proposed in this paper is based on the query statistics of the geographic grid of the target area, which are more accurate and efficient. Based on the query statistics of hot words in the geographic… More >

  • Open Access

    ARTICLE

    Alternative approach to pediatric cardiac quality assessment for low‐volume centers

    Amy E. Delaney1, Nina M. Dadlez2, Audrey C. Marshall2

    Congenital Heart Disease, Vol.14, No.4, pp. 665-670, 2019, DOI:10.1111/chd.12821

    Abstract Background: In pediatric cardiac care, many centers participate in multiple, national, domain‐specific registries, as a major component of their quality assessment and im‐ provement efforts. Small cardiac programs, whose clinical activities and scale may not be well‐suited to this approach, need alternative methods to assess and track quality.
    Methods: We conceived of and piloted a rapid‐approach cardiac quality assessment, intended to encompass multiple aspects of the service line, in a low‐volume program. The assessment incorporated previously identified measures, drawn from multiple sources, and ultimately relied on retrospective chart review.
    Results: A collaborative, multidisciplinary team formed and came to consensus on… More >

  • Open Access

    ARTICLE

    Too little too late? Communication with patients with congenital heart disease about challenges of adult life

    Lisa X. Deng1, Lacey P. Gleason2, Katherine Awh2, Abigail May Khan3, David Drajpuch2,4, Stephanie Fuller5, Leah A. Goldberg2, Christopher E. Mascio5, Sara L. Partington2,4, Lynda Tobin2,4, Adrienne H. Kovacs3, Yuli Y. Kim2,4

    Congenital Heart Disease, Vol.14, No.4, pp. 534-540, 2019, DOI:10.1111/chd.12778

    Abstract Objective: To investigate the experiences and communication preferences of adult patients with congenital heart disease (CHD) in the domains of employment, insur‐ ance, and family planning.
    Design: Patients ≥ 18 years of age completed a questionnaire about experiences and communication preferences regarding employment, health insurance, and family planning.
    Results: Of 152 patients (median age = 33 years, 50% female, 35% with CHD of great complexity), one in four reported work‐related problems due to CHD and a quar‐ ter also recalled a previous gap in health insurance. Of females, 29% experienced an unplanned pregnancy. The median importance of discussion ratings (on… More >

  • Open Access

    ARTICLE

    Two‐year evolution of latent rheumatic heart disease in Malawi

    Amy Sanyahumbi1, Andrea Beaton2, Danielle Guffey3, Mina C. Hosseinipour4, Melissa Karlsten1, Charles G. Minard3, Daniel J. Penny1, Craig A. Sable5, Peter N. Kazembe6

    Congenital Heart Disease, Vol.14, No.4, pp. 614-618, 2019, DOI:10.1111/chd.12756

    Abstract Background: In asymptomatic children, screening echocardiography has been used to attempt to diagnose rheumatic heart disease (RHD) at an early stage (latent RHD). World Heart Federation guidelines have standardized categorization of “definite,” “borderline,” or no RHD by echo findings. The progression of RHD diagnosed through echo screening is not known. In 2014, we screened 1450 schoolchildren in Malawi.
    Objective: Our objective was to evaluate 2‐year RHD evolution among those diag‐ nosed through screening.
    Methods: Two‐year follow‐up echocardiograms of those diagnosed with latent RHD were read by a primary, secondary, then third reader if there was disagreement. Progression or regression of… More >

  • Open Access

    ARTICLE

    Employment after heart transplantation among adults with congenital heart disease

    Dmitry Tumin1,2, Helen Chou1, Don Hayes Jr1,3,4, Joseph D. Tobias1,2,5, Mark Galantowicz6,7, Patrick I. McConnell6,7

    Congenital Heart Disease, Vol.12, No.6, pp. 794-799, 2017, DOI:10.1111/chd.12513

    Abstract Objective: Adults with congenital heart disease may require heart transplantation for end-stage heart failure. Whereas heart transplantation potentially allows adults with congenital heart disease to resume their usual activities, employment outcomes in this population are unknown. Therefore, we investigated the prevalence and predictors of work participation after heart transplantation for congenital heart disease.
    Design: Retrospective review of a prospective registry.
    Setting: United Network for Organ Sharing registry of transplant recipients in the United States.
    Patients: Adult recipients of first-time heart transplantation with a primary diagnosis of congenital heart disease, performed between 2004 and 2015.
    Interventions: None.
    Outcome measures: Employment status… More >

  • Open Access

    ARTICLE

    Preparing adolescents with heart problems for transition to adult care, 2009–2010 National Survey of Children with Special Health Care Needs

    Karrie F. Downing1,2, Matthew E. Oster1,3, Sherry L. Farr1

    Congenital Heart Disease, Vol.12, No.4, pp. 497-506, 2017, DOI:10.1111/chd.12476

    Abstract Objective: A substantial percentage of children with congenital heart disease (CHD) fail to transfer to adult care, resulting in increased risk of morbidity and mortality. Transition planning discussions with a provider may increase rates of transfer, yet little is known about frequency and content of these discussions. We assessed prevalence and predictors of transition-related discussions between providers and parents of children with special healthcare needs (CSHCN) and heart problems, including CHD.
    Design: Using parent-reported data on 12- to 17-year-olds from the 2009–2010 National Survey of CSHCN, we calculated adjusted prevalence ratios (aPR) for associations between demographic factors and provider discussions… More >

  • Open Access

    ARTICLE

    Current trends in racial, ethnic, and healthcare disparities associated with pediatric cardiac surgery outcomes

    Jennifer K. Peterson1, Yanjun Chen2, Danh V. Nguyen3, Shaun P. Setty1

    Congenital Heart Disease, Vol.12, No.4, pp. 520-532, 2017, DOI:10.1111/chd.12475

    Abstract Objective: Despite overall improvements in congenital heart disease outcomes, racial and ethnic disparities have continued. The purpose of this study is to examine the effect of race and ethnicity, as well as other risk factors on congenital heart surgery length of stay and in-hospital mortality.
    Design: From the 2012 Healthcare Cost and Utilization Project Kids Inpatient Database (KID), we identified 13 130 records with Risk Adjustment in Congenital Heart Surgery complexity scoreeligible procedures. Multivariate logistic and linear regression modeling with survey weights, stratification and clustering was used to examine the relationships between predictor variables and length of stay as well… More >

  • Open Access

    ARTICLE

    The effect of an electronic health record–based tool on abnormal pediatric blood pressure recognition

    Sarah A. Twichell1, Corinna J. Rea1, Patrice Melvin2, Andrew J. Capraro1, Joshua C. Mandel1, Michael A. Ferguson1, Daniel J. Nigrin1, Kenneth D. Mandl1, Dionne Graham2, Justin P. Zachariah3

    Congenital Heart Disease, Vol.12, No.4, pp. 484-490, 2017, DOI:10.1111/chd.12469

    Abstract Background: Recognition of high blood pressure (BP) in children is poor, partly due to the need to compute age-sex-height referenced percentiles. This study examined the change in abnormal BP recognition before versus after the introduction of an electronic health record (EHR) app designed to calculate BP percentiles with a training lecture.
    Methods and results: Clinical data were extracted on all ambulatory, non-urgent encounters for children 3–18 years old seen in primary care, endocrinology, cardiology, or nephrology clinics at an urban, academic hospital in the year before and the year after app introduction. Outpatients with at least 1 BP above the… More >

  • Open Access

    EDITORIAL

    Speaking to children and their families about congenital heart disease: Ushering in a new era of healthcare literacy

    Daniel J Penny

    Congenital Heart Disease, Vol.12, No.3, pp. 241-241, 2017, DOI:10.1111/chd.12474

    Abstract This article has no abstract. More >

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