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  • Open Access

    ARTICLE

    Nit-Occlud Lê VSD coil versus Duct Occluders for percutaneous perimembranous ventricular septal defect closure

    Hieu Lan Nguyen1,2, Quang Tan Phan3,4, Linh Huynh Dinh2, Hieu Ba Tran2, Hoyoun Won4, Julian Johny Thottian4,5, Dung Doan Duc1, Truong Nguyen Quang3, Sang Wook Kim4

    Congenital Heart Disease, Vol.13, No.4, pp. 584-593, 2018, DOI:10.1111/chd.12613

    Abstract Objective: To evaluate the efficacy and safety of Nit-Occlud Le VSD Coil versus Duct Occluders ^ for percutaneous closure of perimembranous ventricular septal defect (pmVSD).
    Introduction: VSD closure using conventional pmVSD occluders has been largely abandoned because of an unacceptable high rate of complete heart block (CHB). The advantages of Duct Occluders and VSD Coil are supposed to reduce the drawbacks of previous devices, especially CHB complications.
    Method: Patients underwent percutaneous pmVSD closure were divided into Coil group (using VSD Coil, n = 71) and DO group (using Duct Occluders, n = 315). Patient demographics, clinical presentations, echocardiography… More >

  • Open Access

    ARTICLE

    Modifiable cardiovascular risk factors in adolescents and adults with congenital heart disease

    Kevin C. Harris1, Christine Voss1, Kathryn Rankin2, Basmina Aminzadah2, Ross Gardner1, Andrew S. Mackie2

    Congenital Heart Disease, Vol.13, No.4, pp. 563-570, 2018, DOI:10.1111/chd.12612

    Abstract Objective: Individuals with congenital heart disease (CHD) may be at higher risk of acquired cardiovascular disease than the general population due to their underlying physiology and/or surgical sequelae. We sought to assess the prevalence of cardiovascular disease risk factors in youth and adults with CHD.
    Methods: We assessed cardiovascular health as per the Cardiovascular Health in Ambulatory Care Research Team (CANHEART) health index in patients with CHD aged 15+ years who attended cardiology outpatient clinics. Participants self-reported smoking behavior, fruit and vegetable consumption, physical activity, and whether they had diabetes and hypertension. Individual health indices were categorized… More >

  • Open Access

    ARTICLE

    The role of regional prenatal cardiac screening for congenital heart disease: A single center experience

    Michele M. Pasierb, Josiah M. Penalver, Margaret M. Vernon, Bhawna Arya

    Congenital Heart Disease, Vol.13, No.4, pp. 571-577, 2018, DOI:10.1111/chd.12611

    Abstract Background: Accurate prenatal diagnosis of congenital heart disease (CHD) allows for appropriate delivery and postnatal management. Geographic constraints limit access to fetal cardiology subspecialists. In our approach, general pediatric cardiologists are first line in regional prenatal cardiac screening. We aim to demonstrate the utility of this approach in diagnosing CHD requiring cardiac interventions within 30 days of life.
    Methods: This is a retrospective review of fetal echocardiograms performed at Seattle Children’s Hospital regional cardiology sites (SCH-RC) from December 2008 to December 2015. Referrals to Seattle Children’s Hospital Prenatal Program (SCH-PNP) were evaluated for referral timing, indication, diagnostic… More >

  • Open Access

    ARTICLE

    Pulmonary hypertension: Barrier or just a bump in the road in transplanting adults with congenital heart disease

    Jonathan N. Menachem1, Edo Y. Birati2, Payman Zamani2, Anjali T. Owens2, Pavan Atluri3, Christian A. Bermudez3, David Drajpuch2, Stephanie Fuller4, Yuli Y. Kim2, Christopher E. Mascio4, Vikram Palanivel2, J. Eduardo Rame2, Joyce Wald2, Michael A. Acker3, Jeremy A. Mazurek2

    Congenital Heart Disease, Vol.13, No.4, pp. 492-498, 2018, DOI:10.1111/chd.12606

    Abstract Background: Heart failure (HF) is the leading cause of death in adults with congenital heart disease (ACHD). Identification of disease progression and timing of referral for advanced therapies is often delayed. However, increased awareness and understanding of ACHD and improvements in the approach to treatment have led to improved outcomes. Pulmonary hypertension (PH) is a common barrier to HT. In ACHD, the approach to PH and HT is quite complicated, given the anatomic heterogeneity and lower prevalence and experience. However, in some cases, PH is a result of elevated systemic filling pressures and low output.
    Methods: We… More >

  • Open Access

    ARTICLE

    Financial burdens and mental health needs in families of children with congenital heart disease

    Nancy McClung1,2, Jill Glidewell1, Sherry L. Farr1

    Congenital Heart Disease, Vol.13, No.4, pp. 554-562, 2018, DOI:10.1111/chd.12605

    Abstract Objective: To examine the financial burdens and mental health needs of families of children with special healthcare needs (CSHCN) with congenital heart disease (CHD).
    Methods: Data from the 2009–2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) were used to examine parent-reported financial burdens (out-of-pocket expenses, financial problems, employment impact, caregiving hours) and family members’ need for mental health services in families of CSHCN with CHD. Multivariable logistic regression was used to compare financial burdens and family members’ need for mental health services among CSHCN with and without CHD. Among CSHCN with CHD, multivariable logistic… More >

  • Open Access

    ARTICLE

    Functional classification of heart failure before and after implementing a healthcare transition program for youth and young adults transferring from a pediatric to an adult congenital heart disease clinics

    Albert C. Hergenroeder1, Douglas S. Moodie2, Daniel J. Penny2, Constance M. Wiemann1, Blanca Sanchez-Fournier1, Lauren K. Moore2, Jane Head3

    Congenital Heart Disease, Vol.13, No.4, pp. 548-553, 2018, DOI:10.1111/chd.12604

    Abstract Objective: To describe changes in functional status between the last pediatric and first adult congenital heart disease (CHD) clinic visits in patients with moderate to severe CHD after implementing a healthcare transition (HCT) planning program.
    Design: Quasi-experimental design. Patients were followed prospectively following the implementation of the intervention; Control patients transitioned from the Pediatric CHD Clinic into Adult CHD Clinic before the intervention.
    Setting: Texas Children’s Hospital (TCH).
    Patients: Sixteen to 25-year-olds, cognitively normal, English speaking patients with moderate to severe CHD who transitioned from the Pediatric to the Adult CHD clinic.
    Interventions: An EMR-based transition planning tool (TPT) was… More >

  • Open Access

    ARTICLE

    Optimus covered stent: Advanced covered stent technology for complex congenital heart disease

    Gareth J. Morgan1, Matteo Ciuffreda2, Isabella Spadoni3, Joseph DeGiovanni4

    Congenital Heart Disease, Vol.13, No.3, pp. 458-462, 2018, DOI:10.1111/chd.12596

    Abstract Aim: To assess the acute results of the first human use of the Optimus covered stent in complex coarctation of the aorta.
    Methods and Results: We successfully implanted the Optimus covered stent in eight cases in patients whose preprocedural anatomy looked challenging for currently available covered stents. Six of the patients had native coarctation with one recoarctation following surgical repair. There were no significant complications with reduction in the mean invasive gradient from 22 to 1 mm Hg. The length of stents used ranged from 33 to 57 mm with a median shortening after expansion of 13%. More >

  • Open Access

    ARTICLE

    RSV prophylaxis guideline changes and outcomes in children with congenital heart disease

    Adam S. Walpert1, Ian D. Thomas2, Merlin C. Lowe Jr1, Michael D. Seckeler3

    Congenital Heart Disease, Vol.13, No.3, pp. 428-431, 2018, DOI:10.1111/chd.12590

    Abstract Objective: The aim of this study was to compare inpatient outcomes and costs for children with respiratory syncytial virus and congenital heart disease before and after the change in management guidelines for respiratory syncytial virus prophylaxis.
    Design: Hospital discharge data from the Vizient (formerly University HealthSystem Consortium) were queried from October 2012 to June 2014 (Era 1) and July 2014 to April 2016 (Era 2) for patients aged <24 months with an any International Classification of Disease (ICD)-9 or ICD-10 code for congenital heart disease (745-747.49, Q20.0-Q26.4) and a primary or secondary admitting diagnosis of respiratory syncytial… More >

  • Open Access

    ARTICLE

    Role of virtual reality in congenital heart disease

    Chin Siang Ong1, Aravind Krishnan1, Chen Yu Huang1, Philip Spevak2, Luca Vricella1, Narutoshi Hibino1, Juan R. Garcia2, Lasya Gaur3

    Congenital Heart Disease, Vol.13, No.3, pp. 357-361, 2018, DOI:10.1111/chd.12587

    Abstract Objective: New platforms for patient imaging present opportunities for improved surgical planning in complex congenital heart disease (CHD). Virtual reality (VR) allows for interactive manipulation of high-resolution representations of patient-specific imaging data, as a supplement to traditional 2D visualizations and 3D printed heart models.
    Design: We present the novel use of VR for the presurgical planning of cardiac surgery in two infants with complex CHD to demonstrate interactive real-time views of complex intra and extracardiac anatomy.
    Results: The use of VR for cardiac presurgical planning is feasible using existing imaging data. The software was evaluated by both pediatric More >

  • Open Access

    ARTICLE

    Decreased inappropriate shocks with new generation ICDs in children and patients with congenital heart disease

    Stephanie A. Goldstein, Martin J. LaPage, Brynn E. Dechert, Gerald A. Serwer, Sunkyung Yu, Ray E. Lowery, David J. Bradley

    Congenital Heart Disease, Vol.13, No.3, pp. 413-418, 2018, DOI:10.1111/chd.12585

    Abstract Objective: Inappropriate implantable cardioverter defibrillator (ICD) shocks in children and patients with congenital heart disease (CHD) remain a major complication of device therapy, occurring in as many as 50% of children with ICDs. New generation devices include algorithms designed to minimize inappropriate shocks. This study aimed to evaluate the effect of new generation ICDs on the incidence of inappropriate shocks in the pediatric and CHD population.
    Design: Retrospective study of patients with CHD or under age 25 receiving ICDs between 2000 and 2015. New generation ICDs were defined as those with Medtronic “SmartShock” algorithms.
    Results: Two hundred eight… More >

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