@Article{chd.12523,
AUTHOR = {Juan Villafane, Thomas C. Edwards, Karim A. Diab, Gary M. Satou, Elizabeth Saarel, Wyman W. Lai, Gerald A. Serwer, Peter P. Karpawich, Russell Cross, Russell Schiff, Devyani Chowdhury, Thomas J. Hougen},
TITLE = {Development of quality metrics for ambulatory care in pediatric patients with tetralogy of Fallot},
JOURNAL = {Structural and Congenital Heart Disease},
VOLUME = {12},
YEAR = {2017},
NUMBER = {6},
PAGES = {762--767},
URL = {http://www.techscience.com/schd/v12n6/39230},
ISSN = {3071-1738},
ABSTRACT = {<b>Objective:</b> The objective of this study was to develop quality metrics (QMs) relating to the ambulatory care of children after complete repair of tetralogy of Fallot (TOF).<br/>
<b>Design:</b> A workgroup team (WT) of pediatric cardiologists with expertise in all aspects of ambulatory cardiac management was formed at the request of the American College of Cardiology (ACC)
and the Adult Congenital and Pediatric Cardiology Council (ACPC), to review published guidelines
and consensus data relating to the ambulatory care of repaired TOF patients under the age of 18
years. A set of quality metrics (QMs) was proposed by the WT. The metrics went through a twostep evaluation process. In the first step, the RAND-UCLA modified Delphi methodology was
employed and the metrics were voted on feasibility and validity by an expert panel. In the second
step, QMs were put through an “open comments” process where feedback was provided by the
ACPC members. The final QMs were approved by the ACPC council.<br/>
<b>Results:</b> The TOF WT formulated 9 QMs of which only 6 were submitted to the expert panel; 3
QMs passed the modified RAND-UCLA and went through the “open comments” process. Based
on the feedback through the open comment process, only 1 metric was finally approved by the
ACPC council.<br/>
<b>Conclusions:</b> The ACPC Council was able to develop QM for ambulatory care of children with
repaired TOF. These patients should have documented genetic testing for 22q11.2 deletion. However, lack of evidence in the literature made it a challenge to formulate other evidence-based
QMs.},
DOI = {10.1111/chd.12523}
}