@Article{chd.12540,
AUTHOR = {Carissa M. Baker-Smith, Karina Carlson, Jose Ettedgui, Takeshi Tsuda, K. Anitha Jayakumar, Matthew Park, Nikola Tede, Karen Uzark, Craig Fleishman, David Connuck, Maggie Likes, Daniel J. Penny},
TITLE = {Development of quality metrics for ambulatory pediatric cardiology: Transposition of the great arteries after arterial switch operation},
JOURNAL = {Structural and Congenital Heart Disease},
VOLUME = {13},
YEAR = {2018},
NUMBER = {1},
PAGES = {52--58},
URL = {http://www.techscience.com/schd/v13n1/38944},
ISSN = {3071-1738},
ABSTRACT = {<b>Objective:</b> To develop quality metrics (QMs) for the ambulatory care of patients with transposition of the great arteries following arterial switch operation (TGA/ASO).<br/>
<b>Design:</b> Under the auspices of the American College of Cardiology Adult Congenital and Pediatric
Cardiology (ACPC) Steering committee, the TGA/ASO team generated candidate QMs related to
TGA/ASO ambulatory care. Candidate QMs were submitted to the ACPC Steering Committee and
were reviewed for validity and feasibility using individual expert panel member scoring according
to the RAND-UCLA methodology. QMs were then made available for review by the entire ACC
ACPC during an “open comment period.” Final approval of each QM was provided by a vote of
the ACC ACPC Council.<br/>
<b>Patients:</b> Patients with TGA who had undergone an ASO were included. Patients with complex
transposition were excluded.<br/>
<b>Results:</b> Twelve candidate QMs were generated. Seven metrics passed the RAND-UCLA process.
Four passed the “open comment period” and were ultimately approved by the Council. These
included: (1) at least 1 echocardiogram performed during the first year of life reporting on the
function, aortic dimension, degree of neoaortic valve insufficiency, the patency of the systemic
and pulmonary outflows, the patency of the branch pulmonary arteries and coronary arteries, (2)
neurodevelopmental (ND) assessment after ASO; (3) lipid profile by age 11 years; and (4) documentation of a transition of care plan to an adult congenital heart disease (CHD) provider by 18
years of age.<br/>
<b>Conclusions:</b> Application of the RAND-UCLA methodology and linkage of this methodology to
the ACPC approval process led to successful generation of 4 QMs relevant to the care of TGA/
ASO pediatric patients in the ambulatory setting. These metrics have now been incorporated into
the ACPC Quality Network providing guidance for the care of TGA/ASO patients across 30 CHD
centers.},
DOI = {10.1111/chd.12540}
}