@Article{chd.12621,
AUTHOR = {Sherry L. Farr, Karrie F. Downing, Tiffany Riehle-Colarusso, Ginnie Abarbanell},
TITLE = {Functional limitations and educational needs among children and adolescents with heart disease},
JOURNAL = {Structural and Congenital Heart Disease},
VOLUME = {13},
YEAR = {2018},
NUMBER = {4},
PAGES = {633--639},
URL = {http://www.techscience.com/schd/v13n4/39035},
ISSN = {3071-1738},
ABSTRACT = {<b>Objective:</b> To examine how cognitive and motor limitations in children with heart disease are
associated with education and participation in extracurricular activities.<br/>
<b>Design:</b> Using 2009–2010 parent-reported data from the National Survey of Children with Special
Health Care Needs (NS-CSHCN), we examined prevalence of five functional limitations (learning/
concentration, communication, self-care, gross motor skills, and fine motor skills) by diagnosed
heart disease status using chi-square tests and multivariable logistic regression. Among CSHCN
with heart disease, we examined the associations between severity of each functional limitation
and missing ≥11 days of school in the past year, receiving special education services, and interference with extracurricular activities.<br/>
<b>Results:</b> CSHCN with heart disease (n = 1,416), compared to CSHCN without (n = 28,385), more
commonly had “a lot” of difficulty in the five functional areas (P < .01; adjusted odds ratios: 1.8-
3.3). Among CSHCN with heart disease, “a lot” of difficulty with learning/concentration was most
common (35%), followed by communication (21%), self-care (14%), gross motor skills (12%), and
fine motor skills (10%). Among CSHCN with heart disease, compared to those without, respectively, 27% and 15% missed ≥11 days of school, 45% and 29% received special education
services, and 49% and 29% experienced interference with extracurricular activities (P< .01 for all).
Level of difficulty with the five functional areas was associated with receipt of special education
services and participation in extracurricular activities (P < .001).<br/>
<b>Conclusion:</b> These results support the American Heart Association recommendations to screen children with congenital heart disease for age-appropriate development and provide services when needed.},
DOI = {10.1111/chd.12621}
}