@Article{chd.12668,
AUTHOR = {Joshua Saef, Sandeep Sodhi, Kristen M. Tecson, Vanessa al Rashida, Jong Mi Ko, Kamila S. White, Philip A. Ludbrook, Ari M. Cedars},
TITLE = {Contributors to disease‐specific health knowledge in adults with congenital heart disease: A correlational study},
JOURNAL = {Structural and Congenital Heart Disease},
VOLUME = {13},
YEAR = {2018},
NUMBER = {6},
PAGES = {967--977},
URL = {http://www.techscience.com/schd/v13n6/39080},
ISSN = {3071-1738},
ABSTRACT = {<b>Objective:</b> Growth in the adults with congenital heart disease (ACHD) population
represents a challenge to the health care infrastructure. As patients with chronic
disease are increasingly held accountable for their own care, contributors to disease‐
specific health knowledge, which are known to correlate with patients’ participation
in care, merit investigation to design patient‐focused interventions.<br/>
<b>Design:</b> We conducted a single‐site, cross‐sectional study of ACHD patients.
Investigators retrospectively gathered clinical data as well as psychometric and
health status assessments completed at the time of enrollment.<br/>
<b>Outcome Measures:</b> We investigated the impact of clinical and psychological varia‐
bles on Leuven Knowledge Questionnaire for Congenital Heart Diseases health
knowledge composite scores (HKCS). Variables with significant associations were
considered in a stepwise multivariable regression model to determine which combi‐
nation of variables jointly explained variability in HKCS.<br/>
<b>Results:</b> Overall HKCS was associated with the number of prior cardiac surgeries
(r = 0.273; 95% CI: 0.050‐0.467; P = .016), perceived stress (r = 0.260; 95% CI:
0.033‐0.458; P = .024), SF‐36 emotional well‐being (r = −0.251; 95% CI: −0.451,
−0.024; P = .030), history of noncardiac surgery (P = .037), cirrhosis (P = .048), and
presence of implantable cardioverter‐defibrillator (P = .028). On multivariable mod‐
eling, only the number of cardiac surgeries was found to correlate with HKCS.<br/>
<b>Conclusions:</b> While univariate correlations were found between HCKS and several
other clinical and psychological variables, only number of prior cardiac surgeries inde‐
pendently correlated with disease‐specific health knowledge in ACHD patients. These
results suggest that clinical and psychological variables are not impediments to
disease‐specific health knowledge.},
DOI = {10.1111/chd.12668}
}