@Article{chd.2024.046656,
AUTHOR = {Albert Osom, Krysta S. Barton, Katie Sexton, Lyndia Brumback, Joyce P. Yi-Frazier, Abby R. Rosenberg, Ruth Engelberg, Jill M. Steiner},
TITLE = {Impact of Social Determinants of Health on Self-Perceived Resilience: An Exploratory Study of Two Cohorts of Adults with Congenital Heart Disease},
JOURNAL = {Structural and Congenital Heart Disease},
VOLUME = {19},
YEAR = {2024},
NUMBER = {1},
PAGES = {33--48},
URL = {http://www.techscience.com/schd/v19n1/55777},
ISSN = {3071-1738},
ABSTRACT = {Social determinants of health (SDOH) affect quality of life. We investigated SDOH impacts on self-perceived resilience among people with adult congenital heart disease (ACHD). Secondary analysis of data from two complementary studies: a survey study conducted May 2021–June 2022 and a qualitative study conducted June 2020–August 2021. Resilience was assessed through CD-RISC10 score (range 0–40, higher scores reflect greater self-perceived resilience) and interview responses. Sociodemographic and SDOH (education, employment, living situation, monetary stability, financial dependency, area deprivation index) data were collected by healthcare record review and self-report. We used linear regression with robust standard errors to analyze survey data and performed a thematic analysis of interview data. Survey participants (N = 127) mean age was 42 ± 14 years; 51% were female, 87% white. ACHD was moderate (75%) or complex (25%); 41% functional class C or D. Resilience (mean 30 ± 7) varied by monetary stability: compared to people with difficulty paying bills, resilience was 15.0 points higher (95% CI: 6.9–23.1, <i>p</i> < 0.001) for people reporting having enough money and 14.2 points higher (95% CI: 5.9–22.4, <i>p</i> = 0.001) for those reporting just enough money. Interview participants’ (N = 25) mean age was 32 years (range 22–44); 52% were female, 72% white. ACHD was moderate (56%) or complex (44%); 76% functional class C or D. Participants discussed factors affecting resilience aligned with each of the major SDOH, prominently, economic stability and healthcare access and quality. Financial stability may be important for supporting self-perceived resilience in ACHD. This knowledge can inform the development of resilience interventions for this population.},
DOI = {10.32604/chd.2024.046656}
}