Karrie F. Downing1,2, Matthew E. Oster1,3, Sherry L. Farr1
Congenital Heart Disease, Vol.12, No.4, pp. 497-506, 2017, DOI:10.1111/chd.12476
Abstract Objective: A substantial percentage of children with congenital heart disease (CHD) fail to transfer
to adult care, resulting in increased risk of morbidity and mortality. Transition planning discussions
with a provider may increase rates of transfer, yet little is known about frequency and content of
these discussions. We assessed prevalence and predictors of transition-related discussions
between providers and parents of children with special healthcare needs (CSHCN) and heart problems, including CHD.
Design: Using parent-reported data on 12- to 17-year-olds from the 2009–2010 National Survey
of CSHCN, we calculated adjusted prevalence ratios (aPR) for associations between demographic
factors and provider discussions… More >
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