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  • Open Access

    REVIEW

    Challenges in the Transition and Transfer of Young Adults with Congenital Heart Disease in Latin America and the Caribbean: The “Timeliness Principle”

    John J. Araujo1,2,*

    Congenital Heart Disease, Vol.20, No.1, pp. 61-75, 2025, DOI:10.32604/chd.2025.062927 - 18 March 2025

    Abstract Today, more than 90% of children who are born with congenital heart disease survive and reach adulthood, especially in developed countries. Consequently, the population of adults with congenital heart disease has increased significantly over the last few decades. In Latin America and the Caribbean countries, this same scenario is occurring at an accelerated pace. Loss to follow-up is a global problem in adults with congenital heart disease, ranging from 30–60%. In Latin America and Caribbean countries, it is estimated that less than 10% of adults with congenital heart disease are being followed. The small number More >

  • Open Access

    ARTICLE

    Loss to Specialized Cardiology Follow-Up in Adults Living with Congenital Heart Disease

    Cheryl Dickson1,2,4, Danielle Osborn1, David Baker1,4, Judith Fethney3, David S. Celermajer1,4, Rachael Cordina1,4,*

    Congenital Heart Disease, Vol.19, No.1, pp. 49-63, 2024, DOI:10.32604/chd.2023.044874 - 20 March 2024

    Abstract Background: Much has been written about the loss to follow-up in the transition between pediatric and adult Congenital Heart Disease (CHD) care centers. Much less is understood about the loss to follow-up (LTF) after a successful transition. This is critical too, as patients lost to specialised care are more likely to experience morbidity and premature mortality. Aims: To understand the prevalence and reasons for loss to follow-up (LTF) at a large Australian Adult Congenital Heart Disease (ACHD) centre. Methods: Patients with moderate or highly complex CHD and gaps in care of >3 years (defined as LTF)… More >

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