Jill M. Steiner1, James N. Kirkpatrick1, Susan R. Heckbert2, Asma Habib1, James Sibley3, William Lober3, J. Randall Curtis3
Congenital Heart Disease, Vol.13, No.1, pp. 65-71, 2018, DOI:10.1111/chd.12524
Abstract Introduction: There is relatively sparse literature on the use of administrative datasets for research
in patients with adult congenital heart disease (ACHD). The goal of this analysis is to examine the
accuracy of administrative data for identifying patients with ACHD who died.
Methods: A list of the International Classification of Diseases codes representing ACHD of moderate- or great-complexity was created. A search for these codes in the electronic health record of
adults who received care in 2010–2016 was performed, and used state death records to identify
patients who died during this period. Manual record review was completed to evaluate performance… More >
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