Jill M. Steiner1, James N. Kirkpatrick1, Susan R. Heckbert2, James Sibley3, James A. Fausto3, Ruth A. Engelberg3, J. Randall Curtis3
Congenital Heart Disease, Vol.13, No.5, pp. 721-727, 2018, DOI:10.1111/chd.12638
Abstract Objective: Overall health care resource utilization by adults with congenital heart
disease has increased dramatically in the past two decades, yet little is known about
utilization patterns at the end of life. The objective of this study is to better under‐
stand the patterns and influences on end‐of‐life care intensity for adults with con‐
genital heart disease.
Methods: We identified a sample of adults with congenital heart disease (n = 65),
cancer (n = 10 784), or heart failure (n = 3809) who died between January 2010 and
December 2015, cared for in one multi‐hospital health care system. We used… More >
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