Lisa X. Deng1, Lacey P. Gleason2, Katherine Awh2, Abigail May Khan3, David Drajpuch2,4, Stephanie Fuller5, Leah A. Goldberg2, Christopher E. Mascio5, Sara L. Partington2,4, Lynda Tobin2,4, Adrienne H. Kovacs3, Yuli Y. Kim2,4
Congenital Heart Disease, Vol.14, No.4, pp. 534-540, 2019, DOI:10.1111/chd.12778
Abstract Objective: To investigate the experiences and communication preferences of adult
patients with congenital heart disease (CHD) in the domains of employment, insur‐
ance, and family planning.
Design: Patients ≥ 18 years of age completed a questionnaire about experiences
and communication preferences regarding employment, health insurance, and family
planning.
Results: Of 152 patients (median age = 33 years, 50% female, 35% with CHD of great
complexity), one in four reported work‐related problems due to CHD and a quar‐
ter also recalled a previous gap in health insurance. Of females, 29% experienced
an unplanned pregnancy. The median importance of discussion ratings (on… More >
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