Joshua Saef1, Sandeep Sodhi1, Kristen M. Tecson2, Vanessa al Rashida1, Jong Mi Ko2, Kamila S. White3, Philip A. Ludbrook1, Ari M. Cedars4
Congenital Heart Disease, Vol.13, No.6, pp. 967-977, 2018, DOI:10.1111/chd.12668
Abstract Objective: Growth in the adults with congenital heart disease (ACHD) population
represents a challenge to the health care infrastructure. As patients with chronic
disease are increasingly held accountable for their own care, contributors to disease‐
specific health knowledge, which are known to correlate with patients’ participation
in care, merit investigation to design patient‐focused interventions.
Design: We conducted a single‐site, cross‐sectional study of ACHD patients.
Investigators retrospectively gathered clinical data as well as psychometric and
health status assessments completed at the time of enrollment.
Outcome Measures: We investigated the impact of clinical and psychological varia‐
bles on Leuven Knowledge Questionnaire for… More >
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