Michelle Keir1, Barbara Bailey1, Angela Lee1, Adrienne H. Kovacs1,2, S. Lucy Roche1,3
Congenital Heart Disease, Vol.13, No.5, pp. 740-747, 2018, DOI:10.1111/chd.12647
Abstract Background: With access to surgical care, >90% of today’s infants with congenital
heart disease (CHD) will reach adulthood. During childhood, survivors accrue a
wealth of health care experience and develop strategies for navigating life with a
chronic disease.
Methods: Seeking to learn from this individualized process, we invited adults with complex CHD to participate in narrative analysis—an established qualitative research
method for studying how individuals derive meaning from their personal stories. Audio
recordings of 2‐4 hour free‐form interviews were transcribed and iteratively analyzed
to identify common themes and detect similarities or differences in language, viewpoint and interpretation. Recruitment continued until… More >
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