Jennifer L. Lapum1, Suzanne Fredericks1, Barbara Bailey2, Terrence M. Yau3,4, Jennifer Graham5, Ariane J. Marelli6,7
Congenital Heart Disease, Vol.14, No.2, pp. 185-192, 2019, DOI:10.1111/chd.12716
Abstract Objective: The number of adults with congenital heart disease (CHD) has increased
substantially because of medical advances that are extending life expectancy beyond
childhood. A historical investigation is timely not only because of this significant demographic shift, but also because stakeholder engagement is increasingly important
in shaping research directions. The study questions were: From the perspective of
stakeholders, what is known about the medical treatment for the adult CHD cohort
in Canada and how has it changed over time?
Design/Methods: We harnessed the use of historical research methods and conducted interviews with 21 key informants in order to articulate a… More >
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