Lindsay A. Edwards1,2, Christine Bui2,3, Antonio G. Cabrera1,2, Jill Ann Jarrell2,4,5
Congenital Heart Disease, Vol.13, No.3, pp. 362-368, 2018, DOI:10.1111/chd.12579
Abstract Objective: To improve outpatient advanced care planning (ACP) for adults with congenital/pediatric heart disease followed in a pediatric heart failure (HF) and transplant clinic through quality
improvement (QI) methodology.
Design: A one-year QI project was completed. We conducted quarterly chart reviews and incorporated feedback from the providers to direct subsequent interventions.
Patients and Setting: Patients ≥18 years of age seen in the HF and Transplant Clinic for followup visit were included in analysis.
Interventions: Interventions focused on five main areas: identifying and training providers to have
ACP discussions, standardizing the ACP discussion, standardizing ACP and advance directive (AD)
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