Astrida Kaugars1, Clarissa Shields2, Cheryl Brosig3
Congenital Heart Disease, Vol.13, No.1, pp. 72-78, 2018, DOI:10.1111/chd.12547
Abstract Objective: The study examined parent stress and health-related quality of life (HRQOL) among
families of children with congenital heart disease (CHD) referred for psychological services.
Methods: Parents of 54 children (85% boys) aged 3 to 13 (Mage = 7.48, SD = 2.38) completed
measures to assess parenting stress (Parenting Stress Index – Short Form; Pediatric Inventory for
Parents) and the PedsQL Family Impact Module. Medical information was retrieved from medical
record review.
Results: Half of parents of children with single ventricle anatomy had clinically significant levels of
parenting stress. Parents of children with single ventricle anatomy reported more frequent illnessrelated… More >
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