Brooke T. Davey1, Olga H. Toro‐Salazar1, Naomi Gauthier2,3, Anne Marie Valente2, Robert W. Elder4, Fred M. Wu2, Norman Berman3, Phyllis Pollack5, Ji Hyun Lee1, Rahul H. Rathod2
Congenital Heart Disease, Vol.14, No.6, pp. 1013-1023, 2019, DOI:10.1111/chd.12854
Abstract Introduction: Surveillance and management guidelines for Fontan patients are
lacking due to the paucity of evidence in the literature of screening efficacy on
outcome measures.
Methods: The Fontan Working Group within the New England Congenital Cardiology
Association designed an electronic survey to assess surveillance practices for pa‐
tients with Fontan procedures among New England congenital cardiologists and to
explore variability in screening low‐risk vs high‐risk Fontan patients across regional
programs.
Results: Fifty‐six cardiologists representing 12 regional programs responded to the
survey, comprising ~40% of the total New England congenital cardiac physicians. The
majority of desired testing and consultation was available… More >
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