Djoeke Wolff1, Henricus B. M. van de Wiel2, Mirthe E. de Muinck Keizer1, Joost P. van Melle3, Petronella G. Pieper3, Rolf M. F. Berger1, Tjark Ebels4, Willebrord C. M. Weijmar Schultz5
Congenital Heart Disease, Vol.13, No.2, pp. 319-326, 2018, DOI:10.1111/chd.12576
Abstract Objective: To get an impression of the quality of life (QOL) and sexual well-being in the Fontan
population, and to generate hypotheses for future research.
Methods: For this cross-sectional pilot study, questionnaires regarding health-related QOL, sexual
function and fertility/pregnancy were completed by 21 patients with a Fontan circulation >16
years old, followed at the University Medical Center Groningen, the Netherlands. Semi-structured
qualitative interviews were conducted in 8 patients.
Results: Fontan patients scored significantly lower on general health than their healthy peers (t
(19)=-3.0, P = .008), whereas their scores on other QOL domains and sexual well-being were comparable to normal… More >
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