Elizabeth C. Caris1, Nicole Dempster2, Gil Wernovsky3, Yongjie Miao2, Melissa Moore-Clingenpeel2, Trent Neely2, Rachel Fonseca2, Holly Miller-Tate2, Robin Allen2, Samantha Fichtner2, Jamie Stewart2, Clifford L. Cua2
Congenital Heart Disease, Vol.13, No.4, pp. 528-532, 2018, DOI:10.1111/chd.12619
Abstract Objectives: Siblings of children with chronic medical conditions endorse a lower quality of life compared to age-matched peers. Caregiver and sibling-self report of adjustment are often discordant.
Congenital heart disease significantly affects family life. To date, there have been no studies addressing the functioning of siblings of children with hypoplastic left heart syndrome, one of the most
severe forms of congenital heart disease. The goal of this study was to assess the impact of hypoplastic left heart syndrome on sibling’s quality of life as well as the caregiver’s perception of this effect.
Study Design: Cross-sectional study using a web-based survey… More >
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