Birgitta Svensson1,2,*, Petru Liuba1,2, Anne Wennick3, Malin Berghammer4,5
Congenital Heart Disease, Vol.18, No.3, pp. 349-359, 2023, DOI:10.32604/chd.2023.028391
Abstract Background: Parents of children with complex right ventricular outflow tract (RVOT) anomalies are confronted with their child’s need for heart surgery early in life and repeated reoperations later on. Preoperative assessment needs to be performed whenever an indication for reoperation is suspected. The aim was to illuminate the experiences of parents of children diagnosed with RVOT anomalies, in particular, how they experience their child’s heart disease and everyday life during the assessment and after the decision on whether to perform a reoperation. Method: Individual interviews (n = 27) were conducted with nine parents on three occasions between 2014 and 2016 and analyzed… More >