Jamie L. Jackson1, Jennifer Morack2, Millie Harris2, Jennifer DeSalvo3, Curt J. Daniels4, Deena J. Chisolm2
Congenital Heart Disease, Vol.14, No.2, pp. 305-310, 2019, DOI:10.1111/chd.12732
Abstract Objective: The current study aims to identify the rates of lapses in care and loss to
follow‐up before age one through age five for white and nonwhite congenital heart
disease (CHD) survivors. Nonwhite CHD survivors were hypothesized to experience
an earlier lapse in care and be lost to follow‐up than whites.
Design: Patients were from a large pediatric hospital and had (1) at least one outpa‐
tient cardiology clinic visit or cardiac surgery visit before the age of one and (2) a di‐
agnosis of moderate or complex structural CHD. Cardiology outpatient utilization
rates were tracked from before age one… More >
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