Lye-Ann Robichaud1,2,3, Marianne Olivier-D’Avignon4, Julie Felipe1, Hermann Ferdinand Thomas Ehrenfeld1,2,3, Marc-Antoine Marquis5,6, Bruno Michon7,8, Émélie Rondeau2,3, Mathias Tyo-Gomez9, Michel Duval5,10, Serge Sultan1,2,3,5,10,*
Psycho-Oncologie, Vol., , DOI:10.32604/po.2024.046496
Abstract In pediatric advanced cancer, i.e., when cancer-targeted treatments are not effective, care provided to patients is of palliative nature.
It aims at limiting symptoms and optimizing quality of life (QoL). To orient care, it is necessary to know and measure what is really
important for young people. Unfortunately, tools are still scarce in this context. The aim of this paper is to describe the
development process of a new QoL assessment method, the Advance QoL program. This is specifically designed for the clinical
context of pediatric advanced cancer. Three previous studies carried out by our team identified seven important QoL… More >