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  • Open Access

    ARTICLE

    Opportunities for training to advance the care for adults with congenital heart disease with advanced circulatory failure

    Christopher R. Broda

    Congenital Heart Disease, Vol.14, No.3, pp. 487-490, 2019, DOI:10.1111/chd.12748

    Abstract Heart failure is an emerging issue with important implications in adult patients with congenital heart disease. Practitioners with expertise in both adult congenital heart disease and heart failure are needed to manage this growing and often complex pop‐ ulation. In the United States, the optimal training pathway to enable practitioners to best care for these patients is ill‐defined. This article explores possibilities and issues that interested trainees may encounter during their training experience. More >

  • Open Access

    ARTICLE

    Electronic health record associated stress: A survey study of adult congenital heart disease specialists

    Darcy N. Marckini1, Bennett P. Samuel1, Jessica L. Parker2, Stephen C. Cook1,3

    Congenital Heart Disease, Vol.14, No.3, pp. 356-361, 2019, DOI:10.1111/chd.12745

    Abstract Background: Physician burnout has many undesirable consequences, including nega‐ tive impact on patient care delivery and physician career satisfaction. Electronic health records (EHRs) may exacerbate burnout by increasing physician workload.
    Objective: To determine burnout in adult congenital heart disease (ACHD) specialists by assessing stress associated with EHRs.
    Design: Electronic survey study of ACHD providers.
    Setting: Canada and United States.
    Participants: Three hundred eighty‐three ACHD specialists listed on the Adult Congenital Heart Association directory between February and April 2017.
    Outcome Measures: Burnout was measured using the Maslach Burnout Inventory (MBI) to understand factors contributing to work life and EHR satisfaction. Chi‐ square… More >

  • Open Access

    ARTICLE

    Variation in care practices across pediatric acute care cardiology units: Results of the Pediatric Acute Care Cardiology Collaborative (PAC3 ) hospital survey

    Amanda Hoerst1, Adnan Bakar2, Steven C. Cassidy3, Martha Clabby4, Erica Del Grippo5, Margaret Graupe1, Ashraf S. Harahsheh6, Anthony M. Hlavacek7, Stephen A. Hart3, Alaina K. Kipps8, Nicolas L. Madsen1, Dora D. O’Neil9, Sonali S. Patel10, Courtney M. Strohacker11, Ronn E. Tanel12

    Congenital Heart Disease, Vol.14, No.3, pp. 419-426, 2019, DOI:10.1111/chd.12739

    Abstract Background: The Pediatric Acute Care Cardiology Collaborative (PAC3) was estab‐ lished in 2014 to improve the quality, value, and experience of hospital‐based cardiac acute care outside of the intensive care unit. An initial PAC3 project was a compre‐ hensive survey to understand unit structure, practices, and resource utilization across the collaborative. This report aims to describe the previously unknown degree of practice variation across member institutions.
    Methods: A 126‐stem question survey was developed with a total of 412 possible response fields across nine domains including demographics, staffing, available re‐ sources and therapies, and standard care practices. Five… More >

  • Open Access

    ARTICLE

    Perspectives on advance care planning and palliative care among adults with congenital heart disease

    Jill M. Steiner1, Karen Stout1, Laurie Soine1, James N. Kirkpatrick1, J. Randall Curtis2

    Congenital Heart Disease, Vol.14, No.3, pp. 403-409, 2019, DOI:10.1111/chd.12735

    Abstract Background: Patients with adult congenital heart disease (ACHD) report that ad‐ vance care planning (ACP) is important, and that they want information about prog‐ nosis. However, recognizing importance and being willing to participate are different constructs, and how and when to begin ACP and palliative care discussions remains ill‐defined.
    Methods: We conducted a cross‐sectional survey of 150 consecutive outpatients to assess willingness to participate in ACP, with whom, and important barriers and facili‐ tators to these discussions.
    Results: The majority of participants (69%) reported being willing to participate in ACP; 79% to have a meeting to discuss goals… More >

  • Open Access

    ARTICLE

    Vasopressor magnitude predicts poor outcome in adults with congenital heart disease after cardiac surgery

    Joseph T. Poterucha1, Saraschandra Vallabhajosyula2, Alexander C. Egbe2, Joseph S. Krien3, Devon O. Aganga4, Kimberly Holst5, Adele W. Golden6, Joseph A. Dearani5, Sheri S. Crow4

    Congenital Heart Disease, Vol.14, No.2, pp. 193-200, 2019, DOI:10.1111/chd.12717

    Abstract Background: High levels of vasoactive inotrope support (VIS) after congenital heart surgery are predictive of morbidity in pediatric patients. We sought to discern if this relationship applies to adults with congenital heart disease (ACHD).
    Methods: We retrospectively studied adult patients (≥18 years old) admitted to the intensive care unit after cardiac surgery for congenital heart disease from 2002 to 2013 at Mayo Clinic. Vasoactive medication dose values within 96 hours of admis‐ sion were examined to determine the relationship between VIS score and poor out‐ come of early mortality, early morbidity, or complication related morbidity.
    Results: Overall, 1040… More >

  • Open Access

    ARTICLE

    Better Match, Better Career: Comparing the Mediating Effects of DemandsAbilities Fit and Needs-Supplies Fit between Career Exploration and Career Satisfaction

    Lu Xin1, Mengyi Li2,*, Fangcheng Tang1, Wenxi Wang3, Ying Zhao4, Xiaotong Zheng5

    International Journal of Mental Health Promotion, Vol.21, No.2, pp. 59-68, 2019, DOI:10.32604/IJMHP.2019.010832

    Abstract In the boundaryless career era, employees tend to focus on their own needs and what they can obtain from jobs to make wise career choices and achieve a high level of career satisfaction. Using a sample of 230 Chinese employees, this study investigated the mediating effect of demands-abilities fit and needs-supplies fit in the relationship between career exploration and career satisfaction and compared the mediating effects of these two types of person-job fit. This study found that: 1) employees could achieve a higher level of career satisfaction by conducting more career exploration behaviors; 2) both More >

  • Open Access

    ARTICLE

    How Does Proactive Personality Promote Affective Well-Being? A Chained Mediation Model

    Lu Xin1, Mengyi Li2,*, Fangcheng Tang1, Wenxia Zhou2, Wenxi Wang3

    International Journal of Mental Health Promotion, Vol.21, No.1, pp. 1-11, 2019, DOI:10.32604/IJMHP.2019.010808

    Abstract Based on social cognitive career theory, this research examined a chained mediation model for the relations between proactive personality, career success criteria clarity, career decision-making self-efficacy and affective wellbeing. A two-wave survey study was conducted among Chinese graduating students (N = 235). The results showed that proactive personality (measured at time 1), career success criteria clarity (measured at time 1), and career decisionmaking self-efficacy (measured at time 2) positively related to affective well-being respectively. In addition, the results further revealed that proactive personality was positively related to career success criteria clarity, which further predicted affective well-being More >

  • Open Access

    ARTICLE

    Is population‐based screening for rheumatic heart disease precluded by the Cairo accord? Echocardiography...and beyond

    Carlos E. B. Branco1, Roney O. Sampaio1, Flavio Tarasoutchi1, Justin P. Zachariah2

    Congenital Heart Disease, Vol.13, No.6, pp. 1069-1071, 2018, DOI:10.1111/chd.12676

    Abstract In the 2017, “Cairo Accord on Rheumatic Heart Disease—From Molecules to The Global Community” experts from endemic areas enumerated an approach to reduce the population burden of rheumatic heart disease. The 10 key recommendations in‐ clude immediate logistical objectives as well as domains for further study. Echocardiographic population screening programs were relegated to research alone. Given the large body of supporting data, relegating echo screening to an investiga‐ tional modality is an opportunity lost. More >

  • Open Access

    ARTICLE

    Hospital resource utilization and presence of advance directives at the end of life for adults with congenital heart disease

    Jill M. Steiner1, James N. Kirkpatrick1, Susan R. Heckbert2, James Sibley3, James A. Fausto3, Ruth A. Engelberg3, J. Randall Curtis3

    Congenital Heart Disease, Vol.13, No.5, pp. 721-727, 2018, DOI:10.1111/chd.12638

    Abstract Objective: Overall health care resource utilization by adults with congenital heart disease has increased dramatically in the past two decades, yet little is known about utilization patterns at the end of life. The objective of this study is to better under‐ stand the patterns and influences on end‐of‐life care intensity for adults with con‐ genital heart disease.
    Methods: We identified a sample of adults with congenital heart disease (n = 65), cancer (n = 10 784), or heart failure (n = 3809) who died between January 2010 and December 2015, cared for in one multi‐hospital health care… More >

  • Open Access

    ARTICLE

    The role of regional prenatal cardiac screening for congenital heart disease: A single center experience

    Michele M. Pasierb, Josiah M. Penalver, Margaret M. Vernon, Bhawna Arya

    Congenital Heart Disease, Vol.13, No.4, pp. 571-577, 2018, DOI:10.1111/chd.12611

    Abstract Background: Accurate prenatal diagnosis of congenital heart disease (CHD) allows for appropriate delivery and postnatal management. Geographic constraints limit access to fetal cardiology subspecialists. In our approach, general pediatric cardiologists are first line in regional prenatal cardiac screening. We aim to demonstrate the utility of this approach in diagnosing CHD requiring cardiac interventions within 30 days of life.
    Methods: This is a retrospective review of fetal echocardiograms performed at Seattle Children’s Hospital regional cardiology sites (SCH-RC) from December 2008 to December 2015. Referrals to Seattle Children’s Hospital Prenatal Program (SCH-PNP) were evaluated for referral timing, indication, diagnostic… More >

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